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This report presents the findings of the first ever national survey in the UK, in which nearly 600 parents took part and which looked at the needs and circumstances of minority ethnic families caring for a severely disabled child. The quantitative survey was then compared with data on the circumstances and experiences of white families.

This book examines the role of participants in research and how research ethics can be put into practice. Health, social, and journalistic research are currently subject to very different forms of regulation and codes of practice. By including the experiences of researchers and their subjects the book explores the disciplinary divides.

This first volume explores the ways lifelong learning can contribute to the development of knowledge and skills for employment, and other areas of adult life. It addresses the challenges for researchers to study issues that are central and directly relevant to the political and policy debate, and to take into account the reality of people's lives.